Hello all again,
A lot has happened since the last post, we are having some tech. problems so it's been awhile. The following monday since the last post I was sick again, which means it was not the blood but a certain drug from the chemo called blyominicin. Again I had the high fevers, head aches and sickness but this time all at home. So something that is not fun to deal with. Toward the end of the week I went to my cancer OB for a semi-normal check up, he just sent me to go get some blood work done to make sure my port wasn't infected and therefore causing the sickness on Monday. All that came back normal, but my blood levels are low again. So this week Tues and Wed I am scheduled to get more blood which will extend my chemo day from 8:00-4:30ish instead out getting out at 2ish. Talk about a boring day sitting in a chair and watching TV. :( At least I will get some rest from the kids. :) The most EXCITING news is my count, (remember we want to hit zero) last count around 1800 and my count on the 26th is 47, that's right 47! Praise God again and again!!!!!!!! Keep praying that the rest of the treatments go quickly and I hopefully might beat this thing BEFORE spring! We can do it everyone! Until later....
Monday, January 26, 2009
Saturday, January 17, 2009
Well things continue to go well off the chemo. I feel good, still need a nap everyday but feel good. I was able to pack and take the kids to daycare on Thursday with minimal help from my mom and Friday I got them to her house alone. So it felt good to be a normal person again :) I am scheduled to go in Monday for fluids and one drug. That should only take about an hour and I can drive myself. So this coming week should be more of "normal" again. I still have someone everyday to help with the kids cause I just don't trust myself alone yet. The next week after the coming is back to 5 days of chemo. Until then we are somewhat enjoying watching Talin learning to crawl (he will be 7 months on Sunday) and having fun washing sheets because Annabelle is allowed no more diapers. :) Always fun at the Napper house. Keep praying because it is working!!!! Thanks again prayer warriors!!
Tuesday, January 13, 2009
A brand new start
Hello everyone,
Sorry I have been meaning to update this sooner but time slips away. Anywho...I finished my my five straight days of chemo. Towards the end it got a bit draining and by the weekend I was totally exhausted beyond belief. But with help from family we were still able to give Annabelle a wonderful 3rd birthday party on Saturday. Sunday was a really really tiring day for me as well.
Then on Monday I went to get fluids and a blood transfusion. Turns out I ended up having some sort of reaction to the blood-fevers, headaches, lots of pain in the back, light headness, and nausea all came. So I stayed almost an extra hour and a half at chemo to relief the symptoms before heading home. I ended up getting probably a little more than half the blood I was intended to get. Good news however...my beta count...last time we knew it was like 4300 something, now it has gone back down to 1400 something!!!!!! The new chemo is working!! That has given me the strength and hope to keep on going . :)
Tuesday has been a semi normal day for me. The new blood has given more energy so it seems good to be able to walk from room to room without getting tired. Thank the Lord for He is good, His love endures forever!!!!
Sorry I have been meaning to update this sooner but time slips away. Anywho...I finished my my five straight days of chemo. Towards the end it got a bit draining and by the weekend I was totally exhausted beyond belief. But with help from family we were still able to give Annabelle a wonderful 3rd birthday party on Saturday. Sunday was a really really tiring day for me as well.
Then on Monday I went to get fluids and a blood transfusion. Turns out I ended up having some sort of reaction to the blood-fevers, headaches, lots of pain in the back, light headness, and nausea all came. So I stayed almost an extra hour and a half at chemo to relief the symptoms before heading home. I ended up getting probably a little more than half the blood I was intended to get. Good news however...my beta count...last time we knew it was like 4300 something, now it has gone back down to 1400 something!!!!!! The new chemo is working!! That has given me the strength and hope to keep on going . :)
Tuesday has been a semi normal day for me. The new blood has given more energy so it seems good to be able to walk from room to room without getting tired. Thank the Lord for He is good, His love endures forever!!!!
Friday, January 2, 2009
Since last Saturday and look ahead
This is Seth writing....
A lot has happened the last 6 days since the last post. I will attempt to summarize without writing a book. Last Saturday and Sunday, Meg was having a lot of problems with her legs. Her hamstring and calf muscles were very weak and were causing her pain and she was having problems getting around. A trip from the living room to the kitchen was difficult for her and very frustrating as her legs were to weak to get her around. As Sunday morning progressed it was getting to the point that we were both concerned that something more was going on with Meg. Meg called her doctor and based on his recommendation we headed into the ER for some tests, the concern was that cancer had spread to the spine and that was causing the issues with the legs. We spent about 4 hours at the hospital on Sunday and the CT scans showed no cancer in the spine, the diagnosis was that the weakness and tingling in the legs must be a side effect of the chemo-it was a huge answer to prayer that the cancer was not in the spine, but it was still frustrating for Meg to leave the hospital with her legs still barely working. Monday Meg was feeling a little better and her legs were working for her better. Tuesday was another ok day-Meg was very tired and weak but her legs were feeling decent. Wednesday was another chemo day-outpatient at the cancer center downtown. At this appointment is was brought to Meg's attention that her Beta count was back up (twice in the last 3 weeks). This time the count was back over 3800 from the previous 1200. Wednesday night was a very tough night as we were contacted by Meg's doctor who wanted to set up an appointment for us Friday to discuss other chemo options as her current chemo treatment was no longer effective. We know God is in control, yet it is tough to hear that the chemo treatment that we thought would remedy this cancer is no longer working. Thursday we enjoyed the day as a family, but it was tough knowing that a Friday morning meeting with Meg's doctor was looming. Friday (today) was a very long day. We met Meg's doctor this morning and discussed the different chemo plan going forward. The change in chemo is to more "toxic" drugs that were not the first option, but now seem to be the approach needed to take care of this cancer. This approach is going to be tough as Meg has chemo treatment all 5 days next week. The following 2 weeks she will have chemo on Monday only and then another week of 5 days of chemo. This will continue for probably 12 weeks. Due to how tough one of these drugs is on the lungs, Meg had to go to the hospital today for a test to show that her respiratory system is strong enough for the treatment. Based on the results we received at the hospital it looks as though her lungs are very strong. Some other notes about the new chemo treatment include the fact that this chemo causes lots of nausea and causes some possible spikes in temperature, it also increases the risk for some other diseases in the future. Please pray for us.
Thanks to so many people for your love, support and most importantly prayers
The last week in particular I want to thank Jillia, Cassie, Mark and Becca, Dani and Jeremy, my mom and dad, Meg's mom and dad, Melissa and Scott V (I'm sure I missed some people)
Specific prayer requests:
-Strength for Meg this next week as she has 5 straight days of chemo
-That quickly this new chemo treatment decreases the beta count (to under 0 by or before the end of the next 12 weeks)
-That Meg will not get nausea from the chemo
-That Meg's lungs stay strong
-That Meg's temperature does not spike during these treatments
-That the kids will stay healthy and protected
-That I will be able to coordinate rides for Meg to and from chemo along with care for the kids along with hold down a job
-That Meg will be able to do all this chemo outpatient and not have to be admitted to the hospital for 5 days every 3 weeks
God is good all the time and all the time God is good.
A lot has happened the last 6 days since the last post. I will attempt to summarize without writing a book. Last Saturday and Sunday, Meg was having a lot of problems with her legs. Her hamstring and calf muscles were very weak and were causing her pain and she was having problems getting around. A trip from the living room to the kitchen was difficult for her and very frustrating as her legs were to weak to get her around. As Sunday morning progressed it was getting to the point that we were both concerned that something more was going on with Meg. Meg called her doctor and based on his recommendation we headed into the ER for some tests, the concern was that cancer had spread to the spine and that was causing the issues with the legs. We spent about 4 hours at the hospital on Sunday and the CT scans showed no cancer in the spine, the diagnosis was that the weakness and tingling in the legs must be a side effect of the chemo-it was a huge answer to prayer that the cancer was not in the spine, but it was still frustrating for Meg to leave the hospital with her legs still barely working. Monday Meg was feeling a little better and her legs were working for her better. Tuesday was another ok day-Meg was very tired and weak but her legs were feeling decent. Wednesday was another chemo day-outpatient at the cancer center downtown. At this appointment is was brought to Meg's attention that her Beta count was back up (twice in the last 3 weeks). This time the count was back over 3800 from the previous 1200. Wednesday night was a very tough night as we were contacted by Meg's doctor who wanted to set up an appointment for us Friday to discuss other chemo options as her current chemo treatment was no longer effective. We know God is in control, yet it is tough to hear that the chemo treatment that we thought would remedy this cancer is no longer working. Thursday we enjoyed the day as a family, but it was tough knowing that a Friday morning meeting with Meg's doctor was looming. Friday (today) was a very long day. We met Meg's doctor this morning and discussed the different chemo plan going forward. The change in chemo is to more "toxic" drugs that were not the first option, but now seem to be the approach needed to take care of this cancer. This approach is going to be tough as Meg has chemo treatment all 5 days next week. The following 2 weeks she will have chemo on Monday only and then another week of 5 days of chemo. This will continue for probably 12 weeks. Due to how tough one of these drugs is on the lungs, Meg had to go to the hospital today for a test to show that her respiratory system is strong enough for the treatment. Based on the results we received at the hospital it looks as though her lungs are very strong. Some other notes about the new chemo treatment include the fact that this chemo causes lots of nausea and causes some possible spikes in temperature, it also increases the risk for some other diseases in the future. Please pray for us.
Thanks to so many people for your love, support and most importantly prayers
The last week in particular I want to thank Jillia, Cassie, Mark and Becca, Dani and Jeremy, my mom and dad, Meg's mom and dad, Melissa and Scott V (I'm sure I missed some people)
Specific prayer requests:
-Strength for Meg this next week as she has 5 straight days of chemo
-That quickly this new chemo treatment decreases the beta count (to under 0 by or before the end of the next 12 weeks)
-That Meg will not get nausea from the chemo
-That Meg's lungs stay strong
-That Meg's temperature does not spike during these treatments
-That the kids will stay healthy and protected
-That I will be able to coordinate rides for Meg to and from chemo along with care for the kids along with hold down a job
-That Meg will be able to do all this chemo outpatient and not have to be admitted to the hospital for 5 days every 3 weeks
God is good all the time and all the time God is good.
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