Okay sorry again about the lack of updates but I have been busy. Busy by running to appointments and to the ER etc...
Last week Sunday we made the trip to the ER because I wasn't feeling good and ended up getting some potassium and then being sent home.
Monday I was in for my chemo and then was sent back to the ER because I needed blood and my magnesium was critically low so almost five hours later we got to go home.
Then on Tuesday we had to go to a follow up appointment at my Oncologist's office for a check up.
Friday I had a cat scan on my pelvis, ab area and chest. All this well I was fighting a terrible cold and wasn't eating much at all because my throat was really swollen. What a week.
Which brings us to this week Monday I went into my regular scheduled chemo and found out my blood was low along with my magnesium again.
So on my "down" week I went in on Tuesday and wed. to get blood and magnesium. Along with an eye dr. apt., brought both kids to check ups, and had another apt. at the oncologist. I am telling ya busy busy busy.
My beta number stayed at 3 for two weeks now. I am starting to finally feel back to normal now that chemo is almost here again for 5 days. :) My cat scan results were looking good and everything that was there before has decreased. So that is a good thing.
Where we are now is that we are hoping that my number is not leveling off. If that is the case a switch might have to be done in the type of chemo I am getting. We want the number to go down again and then the road to recovery can begin.
God is in control of everything and this is in his hands. I know the road of suffering is long but the glory at the end I can only imagine :) Please keep praying!
Thursday, March 26, 2009
Tuesday, March 10, 2009
New week and new numbers
Hi everyone,
Time for the new update. Zero escaped us this week but we didn't go up either. I was at 6 and went to 4. This is good, but I know we have a great God and He is all powerful and can get me to zero. I just need to have more patience. Please keep praying because my numbers are still going down. This will come to an end eventually.
kids update:
Annabelle: Was very excited that Aunt Cassie is staying with us this week. Unfortunately this is the last week Cass is going to be able to stay with us. The Workmans have bought a house in Ohio and are moving very soon. So we thank Cass for all her willingness since about January to live with us every couple of weeks--it has made all the difference in our lives.
Talin: A trooper as always, has 3 teeth coming in and you wouldn't even know. Still as naughty as ever getting into EVERYTHING possible including the trash, which now resides on our counter most of the time-yuck. He is not walking yer but it come sooner than mom wants. HE will pull to stand on anything and is now standing with flatter feet than before for more balance....so we all know it's coming in time. He now is just short of 9 months.
Thanks again for all your continued dedicated support and prayers.
Time for the new update. Zero escaped us this week but we didn't go up either. I was at 6 and went to 4. This is good, but I know we have a great God and He is all powerful and can get me to zero. I just need to have more patience. Please keep praying because my numbers are still going down. This will come to an end eventually.
kids update:
Annabelle: Was very excited that Aunt Cassie is staying with us this week. Unfortunately this is the last week Cass is going to be able to stay with us. The Workmans have bought a house in Ohio and are moving very soon. So we thank Cass for all her willingness since about January to live with us every couple of weeks--it has made all the difference in our lives.
Talin: A trooper as always, has 3 teeth coming in and you wouldn't even know. Still as naughty as ever getting into EVERYTHING possible including the trash, which now resides on our counter most of the time-yuck. He is not walking yer but it come sooner than mom wants. HE will pull to stand on anything and is now standing with flatter feet than before for more balance....so we all know it's coming in time. He now is just short of 9 months.
Thanks again for all your continued dedicated support and prayers.
Monday, March 2, 2009
Another week of numbers
Hola (hello for those that need translation) :) hehe
Last week I didn't post anything because there was minor changes and therefore not blog worthy in my opinion. :0 My beta count was 10 and last week it went to 13 and that was about it. I did get some more blood, but that's about it.
This week my number went down again to six. Single digits now guys. Remember I have at least 2 more sessions to go once we hit zero. As glad as I am to hear six, to me it's not zero and therefore I need at least 6 more weeks of chemo and more time to get to zero. This is a long hard road for me and I and emotionally ready and needing zero more than anything now. Spring is on the way and I am ready for a change in a major way.
So please pray because this is getting harder now more than anyother time, or at least it seems that way. I am going to boldly ask that everyone pray that my beta count does not go up anymore. If it goes up that just prevents me more from getting done with this all. So please pray and pray earnestly and with conviction. Thanks in so many ways.
Last week I didn't post anything because there was minor changes and therefore not blog worthy in my opinion. :0 My beta count was 10 and last week it went to 13 and that was about it. I did get some more blood, but that's about it.
This week my number went down again to six. Single digits now guys. Remember I have at least 2 more sessions to go once we hit zero. As glad as I am to hear six, to me it's not zero and therefore I need at least 6 more weeks of chemo and more time to get to zero. This is a long hard road for me and I and emotionally ready and needing zero more than anything now. Spring is on the way and I am ready for a change in a major way.
So please pray because this is getting harder now more than anyother time, or at least it seems that way. I am going to boldly ask that everyone pray that my beta count does not go up anymore. If it goes up that just prevents me more from getting done with this all. So please pray and pray earnestly and with conviction. Thanks in so many ways.
Wednesday, February 18, 2009
Still going down.
Well we will start off with some good news :) This past Monday my beta count was lower again! I am now down to 10. Pretty exciting stuff. God is good all the time and all the time God is good. So we are still working towards hitting zero and then I will have two more rounds of three weeks each so we are looking maybe sometime in April wrapping this all up, that is if we stay on course. So keep praying please because once again this is working!
Kids update:
We are always battling colds as everyone of course. Talin is officially 8 months old now, crawling around the house as a mad man and recently found the steps so the baby gates are going up :)
Annabelle is close if not potty trained already, we made the big step of willingly pooping on the potty FINALLY. That's what we get excited about in the Napper house now :)
That's all for now. We wish happy and safe travels back from Calf. for most of the Napper family. We will see you soon.
Kids update:
We are always battling colds as everyone of course. Talin is officially 8 months old now, crawling around the house as a mad man and recently found the steps so the baby gates are going up :)
Annabelle is close if not potty trained already, we made the big step of willingly pooping on the potty FINALLY. That's what we get excited about in the Napper house now :)
That's all for now. We wish happy and safe travels back from Calf. for most of the Napper family. We will see you soon.
Tuesday, February 10, 2009
Count back down
Well good news for everyone! My beta count went back down again. It was 47, then went up to 74 and back down to 29! There is light at the end of the tunnel that spring will be more refreshing than we thought. :) This week I have an apt. on Thursday as a normal check again and another lung test on Friday, so let's hope these apt. go well. Next week I might need help with a few rides in the morning around 8:00 to 9:00 and one in the afternoon around 2:00...we will see if we can get it figured out. Keep praying guys we are close to beating this thing!!!!!
Wednesday, February 4, 2009
Tuesday, February 3, 2009
count up a bit and puke puke puke
Another quick update for all.
Monday I went in for my hour long chemo and got called back the minute I got home because my potassium levels were extremely low and needed to be replenished immediately, so back I went in for another 2 hours during which i got an horrible swollen throat. Reaction? We are not sure. The potassim really helped my energy anyways, just not fun to go right back to chemo after you just got out!
Monday night Seth started to get really sick and throwing up etc... and stayed home on tuesday pretty unseen all day. Let's hope this clears quickly. Plus Annabelle was spitting up in the morning and pulled out a lovely throw up in the middle of Target on Tuesday! What fun luckily my sister was with me for some extra help. She is staying the night on tuesday thank goodness.
News about my counts...last monday I was at 47 and went up to 74 since then, which is horrible but not what we really were hoping for. We are thinking it could ust be the new chemo adjusting in my body yet so I am being watched carefully and tested again next monday to see where I am then.
Until then we need everyone HEALTHY again for the zillionth time this winter :)
Keep praying everyone....
Monday I went in for my hour long chemo and got called back the minute I got home because my potassium levels were extremely low and needed to be replenished immediately, so back I went in for another 2 hours during which i got an horrible swollen throat. Reaction? We are not sure. The potassim really helped my energy anyways, just not fun to go right back to chemo after you just got out!
Monday night Seth started to get really sick and throwing up etc... and stayed home on tuesday pretty unseen all day. Let's hope this clears quickly. Plus Annabelle was spitting up in the morning and pulled out a lovely throw up in the middle of Target on Tuesday! What fun luckily my sister was with me for some extra help. She is staying the night on tuesday thank goodness.
News about my counts...last monday I was at 47 and went up to 74 since then, which is horrible but not what we really were hoping for. We are thinking it could ust be the new chemo adjusting in my body yet so I am being watched carefully and tested again next monday to see where I am then.
Until then we need everyone HEALTHY again for the zillionth time this winter :)
Keep praying everyone....
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